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Written by Kristin Ricci
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Monday, 06 July 2009 11:57 |
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Currently Drew, my mother, and I are in St. Petersburg, Florida, obtaining vasodilation therapy for the king. Initially, I discovered Dr. Hammesfahr's website a couple years ago by "googling" treatment for cerebral palsy. I added this therapy to a mental list of possible things to try in the future for Drew. While we were in China, we met a few people who had success with vasodilation with Dr. Hammesfahr and another couple who had booked their first appointment for when they returned home. I also learned a fair amount from the yahoo group I belong to titled "BIA4Kids." The moderator highly suggests umbilical stem cell treatment, followed by vasodilation as soon as possible upon returning home. Other members of this group have done this procedure and have noticed significant results with their loved ones. Mike and I did a little more research concerning possible health risks and his certifications/credentials...everything looked promising. So here we are!
In theory, vasodilation will open up blood vessels in the brain allowing the stem cells to reach various parts of the brain easier and more effectively. The increased blood flow and the stem cells will then help heal/repair the neural tissue. Dr. Hammesfahr mentioned on our phone conference that the most effective way of utilizing these therapies is to start the vasodilation before the stem cell infusions but if that's not possible then as soon as possible afterwards. Our last treatment was about 2 months ago which hopefully isn't too long ago. The doctors in China told us several times that the stem cells are actively repairing neural tissue for up to 1 year later.
Our first appointment was this morning; it was about 30 minutes of interviewing and asking questions. Our major duties today were to obtain Motrin, magnesium, and a prescription for topical Nitrate paste. Drew needs to start taking the Motrin and Magnesium today because sometimes the nitrate can initially constrict blood vessels and anti-inflammatories can help prevent this.
Tomorrow we will start with a microscopic amount of nitrate on Drew's legs. Dr. Hammesfahr is starting with the cream on Drew's legs because it is the farthest place on his body away from his brain. He wants to assess how Drew tolerates this, and he will progress to different parts of his body like the abdomen, posterior neck, etc. The topical nitrate only dilates the outer portion of Drew's brain. This is the first step to Dr. Hammesfahr's treatment. We may progress to other medications that dilate deeper vessels in the brain sometime during the next two weeks depending on how well Drew is doing. He also suggested we obtain a SPECT scan 6 months after Drew's latest stem cell infusion to see how the blood flow is in various parts of his brain. That would be in November. This makes it easier to judge which areas need therapy.
Dr. Hammesfahr mentioned that he treats brain damage like a cardiologist would treat a patient after a heart attack. He also mentioned this is not a quick fix; that it will take years. During our phone conference a couple weeks ago, he mentioned that the state of Florida mandates out-of-state patients to return every 3 months to continue with medical treatment. I guess we will see what happens. His first aim for Drew is to improve his head and trunk control. Tomorrow he will videotape Drew to catch some of his athetoid-like movements on record.
Please ask me all questions through my comment section so I can ask Dr. Hammesfahr! Our last appointment is July 16th in the morning, so ask sooner than later!! |
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Written by Mike Ricci
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Wednesday, 10 June 2009 22:17 |
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Today is our 4th anniversary and wow has life changed since 2005! Our marriage has definitely started on a different course than most but that's okay. We had Drew early on in our marriage and it was a roller coaster both in the NICU and out. I probably don't need to go into detail, needless to say life was pretty tough back then. Life was also challenging when Drew was discharged from the NICU. As newlyweds we had to juggle the frequent NG feedings, oxygen, heart monitors, medications, doctors appointments, and therapy appointments. We had to do this all on our own because we had just moved to Chicago to jump start our careers.
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Written by Mike Ricci
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Wednesday, 13 May 2009 14:24 |
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My mother was actually the one that discovered Beike Biotech in January of 2008. She pretty much just googled treatment for cerebral palsy and came across an advertisement for stemcellschina.com. She promptly emailed us the website link and we thought she was crazy. We sort of laughed it off. A few weeks later it sort of popped in my head again, so I started reading a little bit on it. Then I started reading and researching like a madwoman. We hit the contact link on the website and 7 months later we were in China!
Beike is a bio-technology company formed in January of 2005 however the collaborating scientists have been treating patients with stem cell injections since 2001. Stem cell injections are available for people suffering from Ataxia, Autism, ALS, Brain Trauma, Cerebral Palsy, Guillain-Barre, Encephalatropy, MS, ONH, Spinal Cord Injury, Stroke, and many more diseases/disorders. The main research labs are currently in Shenyang, Shenzhen, Zhengzhou, and Hainan. Beike is big on utilizing a double check system to ensure the umbilical cord blood is disease free.
We have had only positive experiences working with this company. The employees promptly answer all questions and are greatly accommodating. Everything is organized and we feel safe in their hands. If anyone is interested in pursuing umbilical cord stem cell treatment, we highly recommend contacting this company. |
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Written by Kristin Ricci
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Sunday, 17 May 2009 09:43 |
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My Husband and I have traveled to China with our son twice now for stem cell transfusions. We never saved Drew's umbilical cord and we knew for three days that he would be born extremely early. I don't even remember having any discussions about this with our team of doctors. I remember thinking briefly about it but I remember reasoning with Mike that the medical team would tell us if they thought we should save it. We were definitely not in the right frame of mind to be making these type of decisions. Looking back on the Spring of 2006 I sure wish we would have screamed "Yes, save it!". We didn't know anything concerning umbilical cord stem cells and the conditions the stem cells can treat. However we haven't beaten ourselves up over it, we learned a long time ago that worrying and obsessing over your past only makes your present life miserable. Anyways, my advice for anyone expecting would be to definitely save the umbilical cord because you can never predict the future. The potential benefits from doing so outweigh any costs associated with it.
I do know that Duke University located in Durham, North Carolina will transfuse a person's own umbilical cord stem for treating cerebral palsy. I called in the spring of 2008 and Drew was put on a transplantation list since we didn't save his umbilical cord. The person I talked with did tell me due to his extremely low birth weight, they might not have been able to do the autologous transplant anyways. However, if Duke University does contact us and is able to do a transfusion with donated umbilical cord stem cells, I will definitely write a post on here to update everyone. The ability to do this type of transfusion may take awhile in the USA, so my best advice would be to start conducting your own research on what is available in other countries. |
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Written by Kristin Ricci
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Thursday, 21 May 2009 14:32 |
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Our son has received 14 stem cell infusions over the past year. This was split into two visits. Each stem cell infusion contains between 10 to 15 million stem cells. The stem cells were derived from donated umbilical cords while we were in China. Since each umbilical cord only contains between 100,000 to 300,000 stem cells, Drew also had received nerve growth factor infusions. The nerve growth factor was extracted from the cord serum and it's main purpose is to encourage the repair of neurons. Also, the nerve growth factor aids the potential of the stem cells. Whenever Drew would receive his stem cell infusion, it was always followed with the nerve growth factor infusion.
Stem cells derived from umbilical cord blood would fall into the adult stem cells category. Embryonic stem cells are derived from embryos that are at least a few days old. These two types of stem cells are derived from two completely different sources. Most of the information we've researched largely pertains to umbilical cord stem cells. However, we are keeping our eyes open on embryonic stem cells transfusions around the world. Our biggest concern would be adverse side effects.
Stem cells derived from umbilical cord blood contain a large reservoir of hematopoietic stem cells. Hematopoietic stem cells (HSCs) are defined by their ability to form multiple cell types including neurons which is exactly what we were looking for! Since umbilical cord stem cells are considered to be the most immature type of stem cell, they lack exterior protein markers (antigens), which means the host would not recognize the stem cells as foreign. This means there are no incidences of graft vs. host disease. I remember this was our greatest fear with proceeding forward with this treatment and we spent a long time scouring the Internet for adverse reactions to the treatment. |
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